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Jonah's Just Begun
A Foundation to Cure Sanfilippo
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Events
Jonny Lee Miller is Running for Jonah’s Just Begun. May 4th-5th Bear Mountain NY State Park.
Salut, Prost, Cheers to a Cure! Wine Event: August 25, 2013
Symposiums
World Symposium 2013: February 12 – 15
RDLA Honors World Rare Disease Day: February 26 – 27, 2013
JJB Honors World Rare Disease Day 2013 FLASH MOB: March 3, 2013
WHAT IS SANFILIPPO?
Current Research
Primary Investigators
Natural History Study & Patient Registry
HANDS Partners
Sanfilippo Barcelona – Spain
Sanfilippo Sud – France
Jonah’s Just Begun – Portugal
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Upcoming Events
Jonny Lee Miller to Run “North Face Bear Mountain Run” on Behalf of JJB: May 4 – 5, 2013
Salut, Prost, Cheers to a Cure! Wine Event: August 25, 2013
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Jonah's Just Begun
P.O. Box 150057
Brooklyn, NY 11215
Phone: 347-689-2186
Fax: 347-710-3136